The hashtag ActuallyAutistic has been trending since yesterday and whilst this makes me feel a bit warm inside, it’s just because of this stupid Spectrum 10K thing.
I have my own problems with it, as described yesterday, but others have eloquently expressed other issues, including a link to Autism $peaks, famous autism hate group.
Here’s Sarah’s blog about it, https://autisticallysarah.com/2021/08/24/the-dangers-of-spectrum-10k/
This blog was apparently coming up 1st in a google search about Spectrum 10K, above the studies own website but has since dropped to lower down so give it some love.
Take special note of the thread from Dr Monique Botha, who I had the pleasure of virtually meeting yesterday. Her points about the use of the data are excellent.
But above all, if you’re autistic please don’t send them your dna.
Even better, why not take part in some actually autistic research here… https://kentpsych.eu.qualtrics.com/jfe/form/SV_1FU9qFuHxPWayEu